What We’ve Tried for EDS

Disclaimer: This section is a collection of personal recommendations and stories about treatments people have tried for this chronic illnesses—the good, the bad, and everything in between.

It’s important to remember:

  • Everyone’s body is different. What works well for one person may not work for someone else, and side effects can vary greatly.

  • This is not medical advice. These stories are meant to provide possible insights you can discuss with your doctor—not as guidance to self-medicate or change treatments on your own.

  • ‘Knowledge is power. Many doctors may not be aware of the wide range of medication options available for chronic illnesses. Use these stories as conversation starters with your healthcare provider.

Please consult your doctor before making any decisions about your treatment.


Prescriptions

Low-Dose Naltrexone

Members have also used this to treat: Fibromyalgia


Over the Counter

CBD Meds


Alternative Therapies

Physical Therapy

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EDS Diagnosis: What’s Next?

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Eva’s EDS Diagnosis Story